Why we built Orelia
When a disease is rare, the hardest part is finding the few specialists who have seen it before.
What Orelia does
Most doctors may never have seen a case. A name on a list is not an appointment. Specialists, studies, patient groups and travel help live in different places. Every new office asks you to start from zero.
Orelia does the searching and the chasing. We look in public sources and check every claim. You choose who to contact, and you approve every message. Then we reach out and follow up, until there is an appointment, a screening or an answer. No diagnosis yet? We can help you look for one too.
For rare disease
The zebra is the symbol of rare disease. It comes from a saying: when you hear hoofbeats, think horses, not zebras.
Experts estimate that more than 10,000 rare diseases exist.
Progress in data science and an increased understanding of disease genetics lead experts to agree that more than an estimated 10,000 rare diseases are affecting millions of people in the United States. 1 Most rare diseases pose serious health risks, often threatening lives and causing major illness.
Source: rarediseases.info.nih.gov (opens in a new tab)Getting a diagnosis can take nearly five years.
The survey’s findings reveal an average diagnostic journey of nearly five years, with marked variations depending on demographic and geographic factors.
Source: eurordis.org (opens in a new tab)